Hello, friends and enemies. You will all be glad to hear that my shower is finally almost done. The contractor worked all week last week and got it basically finished. However, it still needs a door (…details). I’ve been informed that this should maybe show up on Monday. The good news is the work is close enough to done that I was able to clean and start using the en suite bathroom again, which is a great relief to me. The shower looks very nice, I would just like to be able to use it and be done. If I ever have to get this remodeled again, I will scream.
Current Events
This is still not a news blog but I want to gather my thoughts on what’s happening with disabilities right now, starting with vaccines. It’s upsetting that vaccines, which improved population-level health so notably in the 20th century, are being undermined by conspiracy theories and “skeptics.” Vaccines work. For the record, vaccines do not cause autism. Most people start noticing signs of autism in their kids around the same time that kids start getting vaccines. That’s it. People who would rather risk a preventable disease killing their child rather than—in their minds—put them at risk of autism make me so sad. They would rather have a potentially dead kid than a living autistic kid. Speaking as an autistic adult: that fucking sucks. Autistic people deserve to live. If anyone wants sources on this subject, the Maintenance Phase podcast did a thorough episode called RFK Jr. and The Mainstreaming Of The Anti-Vaxx Movement and their website has a bunch of links to their sources.
Anyway, the current part of these events is that our new secretary of Health and Human Services, Robert Kennedy Jr., is hard at work doing things that will probably make it harder to get vaccines, or get vaccines at all. This week, he cancelled (or possibly postponed, but it sounds like cancelled) a meeting where scientists determine which strain of the flu they should vaccinate against this year. Does that mean we won’t get a flu shot this year? The Centers for Disease Control and Infection (CDC) was also “ordered to shelve some promotions it created for a variety of vaccines, including a campaign touting seasonal flu shots.” This also sucks because vaccines work better when more people get them. This is all happening amid the worst flu season since before the pandemic and when there’s a measles outbreak that has killed at least one person. Measles had been classified as eliminated since the year 2000, but through sheer grit and determination, Americans have revived it. I can’t top what The Onion has to say about this: RFK Jr. Vows To Make Measles Deaths So Common They Won’t Be Upsetting Anymore. Thanks, guys.
The other aspect of RFK Jr.’s, … I want to say policy positions? Beliefs? Plans? Random wishes he is attempting to manifest? that has been circulating recently is that he does not want any of us on SSRIs (antidepressants), adderall, or basically any drugs that help level out our brains. And he thinks we should be on “farms.” Futurism.com reported on these remarks last summer:
“I’m going to create these wellness farms where they can go to get off of illegal drugs, off of opiates, but also illegal drugs, other psychiatric drugs, if they want to, to get off of SSRIs, to get off of benzos, to get off of Adderall, and to spend time as much time as they need — three or four years if they need it — to learn to get reparented, to reconnect with communities,” he said during the broadcast.
This has become a bit of a meme lately and, whenever I see it, I tell my friends I hope we end up on the same farm. But I’m laughing so I don’t cry.
I think this has taken off recently in context of the Executive Order dated February 13, 2025 titled “Establishing the President’s Make America Healthy Again Commission.” The EO mentions the rate of ADHD and autism, among other physical health issues, then states:
This poses a dire threat to the American people and our way of life. Seventy-seven percent of young adults do not qualify for the military based in large part on their health scores. Ninety percent of the Nation’s $4.5 trillion in annual healthcare expenditures is for people with chronic and mental health conditions. In short, Americans of all ages are becoming sicker, beset by illnesses that our medical system is not addressing effectively. These trends harm us, our economy, and our security.
Autism and ADHD aren’t “threats to the American way of life.” They’re just another way that brains work. The real tell here is they are worried about having enough people to enlist in the military. Just a suggestion: what if we didn’t maintain the world’s largest military and over 700 bases worldwide? That might help with the staffing shortage.
I don’t know what the real end game here is for anyone these right-wing jackasses deem unfit. I do know that there’s an active suit from multiple states attempting to end Section 504, which is what grants all children the right to a free and appropriate education, regardless of what disabilities they may have. I do know that Trump and his administration are tacking “accessibility” onto “diversity, equity, and inclusion” for a “DEIA” acronym when they’re telling federal workers that they’re useless and air traffic controllers that they’re doing a bad job. I do know that many of the pieces of our social safety net that Trump is threatening are key to making sure disabled people can participate in society. Finally, and I hate that this sounds paranoid (but I don’t think it is paranoid), we also know that disabled people were the first victims of the Nazi regime. Do I think Trump or RFK Jr. or Russel Vaught are going to put me on a “wellness farm” because I’m autistic. I don’t know. However, I am deeply troubled that they appear to be laying the legal groundwork to justify doing so. They are going to make it harder to exist as a disabled person so they can complain that we’re a drain on society. They’re making big investments in prisons (discussed in my previous post) to detain immigrants (for now). I don’t think it takes a Ph.D. in history to see where this could go. The U.S. has put people in internment camps before and I believe it could happen again. It’s happening right now, with thousands of people being held in ICE detention centers.
I wish I could end this section with something hopeful or a suggestion for things to do. I don’t know what to do beyond the usual stuff: get involved in your community, participate in mutual aid, stay informed, have a backup plan. I am scared. Seeing the news about that EO really fucked me up. I spent a whole day vibrating with anxiety. I expected Trump round two to be a horrorshow but I didn’t think we’d escalate to “what if we put the disabled people in camps” so quickly. Sometimes I just write about this stuff to not feel crazy. I see things on instagram like “haha we’re gonna be insufferable unmedicated on the RFK Jr. wellness farm!” and I laugh but the blog is where I take the time to look it up and see what did he actually say. Where did that information come from. Did something get lost in translation as it traveled through social media. I think this particular strain of news is as bad as they’re making it out to be online. Things could get really ugly. I don’t know what else to say, so here’s a picture (valued at 1,000 words).
Books and Other Words
I have a (bad?) habit of reading the first book in a series, buying the following books, then not getting to the rest of the series for years because I want to re-read the first book so I can fully appreciate the next ones. To that end, I recently re-read Arkady Martine’s A Memory Called Empire because I still haven’t read the sequel, A Desolation Called Peace. I was hoping to find what I wrote about this book when I first read it in 2019 because I remember loving it although I got a little lost by the end. However, I read it just before I started writing here regularly. so my opinions are lost to time. I really do remember losing the plot and getting confused, even though it was totally clear to me this time around. It made me reflect on the fact that I think I’ve gotten better at reading, as strange as that sounds, even though reading is a skill like anything else, since doing vision therapy a few years ago. The words I read are staying in my brain more strongly because I’m not using all my energy on physically focusing my eyes. As for the book itself: I love it. It’s about Mahit Dzmare, a woman who grew up on a space station just outside the Teixcalaanli empire. She’s selected to be the station’s ambassador in the empire’s capital. There is, of course, a ton of intrigue and politicking and there is even a revolution and attempted coup (too close to home?). The world Martine created is so detailed and rich, and I think that is because she is also a scholar of the Byzantine empire. There are a number of science fiction writers who are also academics and I find that they are writing some of the most immersive worlds (Ada Palmer is another author who comes to mind). A Memory Called Empire also deals with the tension of not being a part of the dominant, colonizer culture and wanting to belong while also not wanting to lose one’s identity. I also appreciated the linguistic and literary elements in the story; there’s a lot of discourse about poetry and allusion and how the language of the empire works differently than that of Mahit’s native culture.
This probably sounds silly but I feel embarrassed if I only have one book to talk about from the last two weeks. I know no one cares but me, and I certainly wouldn’t care if someone told me they “only” read one book in the last fortnight. And yet. Maybe by my next post I’ll have finished all the books I’m in the middle of.
Meanwhile, on the internet:
- 1 in 5 Americans Are Doom Spending via creditcards.com. It’s me. I’m one in five Americans.
- War Robot Put On a 30-Minute DJ Set at a California Club via Vice. I am once again begging people to make technology that does the boring stuff, like taxes or sorting recycling, instead of making art. Art is the point of being alive. Besides, do you think a robot could do this?
- Microsoft to Shut Down Skype: Farewell to the ‘Rotary Phone’ of Communications via CNET. Bad news for everyone who meets with their language teachers online: Skype is being decommissioned. Some of you might say “Skype is still around?” but every single person I’ve taken a language class from is using Skype because it’s easy and accessible and does what we need it to do. I’ve been pitching Signal as an alternative since it seems like it does have a screenshare option, but it’s annoying to have to change to new software just because Microsoft doesn’t feel like maintaining it! Make it open source, you cowards!
- Bone Into Stone via The Dial. I just love Jhumpa Lahiri!
- How To Be a Fighter When You Feel Like a Punching Bag via Organizing My Thoughts. From the article:
More and more often, I am seeing people live the entirety of their political lives, or at least, the vast majority of their political lives, on social media. I am not talking about people whose organizing largely occurs virtually, as there are many ways that people engage with activism digitally (including meetings, webinars, discussion groups, and other projects that are largely conducted online), but rather, people whose political existence is mostly or completely confined to the infrastructure of social media. For such people, the ability to work across differences is often lacking or entirely absent, because social media does not involve that kind of engagement. Social media is a performance-based technology. Collective action is not performance-based. It is grounded in relationships, cooperation, and an ability to prioritize shared objectives.”
Media
February 24th is Twin Peaks day, so I felt that would be the right day to start watching this cult classic TV Show. I have only heard good things about it, mostly from Lito, whose taste I have complete trust in. My mom also corroborated this and said she loved watching it when it originally came out. My initial thoughts (three episodes deep) are that it is cool and interesting and weird. I do wonder, however, how Laura Palmer had time for all of her activities. She was tutoring someone, running Meals on Wheels, and had like 15 boyfriends? What is going on? Moreover, will I ever know what is going on (based on this show’s reputation: no).
Rampant Consumerism
My bread machine, which served me faithfully for I think ten years, was getting some kind of corrosion on the bottom of the pan where it connects to the thing that makes the paddle spin. I had been coveting a fancy new bread machine for a while (not the least because I was disgusted to find that our pantry moth infestation last year also led to moths in the machine, which I cleared out with a handheld vacuum. I know they were not in my bread but still … yuck). Since buying a new pan cost almost as much as we originally paid for the bread machine, I decided to just get the fancy new one. I am now the proud owner of this Zojirushi bread machine. It has a lot more settings, the pan has two paddles and is wider so when you bake bread in there, it comes out in a normal loaf shape, and it has a little window so you can see the dough! I use the bread machine probably at least weekly so I know I am going to get my money’s worth. I am also looking forward to experimenting with baking cakes and other things in there, especially in the summer when it’s too hot to live, let alone turn on the oven. I tested it for a dough that I baked in the oven and that worked well. I tried out the “homemade” mode, where you can set all the kneading and rising times, then the machine beeps at you so you can take the loaf out and shape it and return it to the machine to bake. I used the recommended timing for this and my dough rose too high and then collapsed during the baking process. It’s still edible but the texture is a little off. It’s going to take me a few tries to get it just right, I think, but we’re gonna get there.



Collection Management, or Digital Housekeeping
I’ve started working on organizing my ebooks recently after it was brought to my attention that Amazon would no longer allow people to download ebooks books they’ve purchased, except directly to a Kindle device or app as of February 26 (unfortunately I did not get this news to the people before that deadline; I only heard about it myself a few days beforehand. Then again, I am not a journalist or news outlet). Amazon can choose to be shitty about digital content people have bought, paid for, and theoretically own because of DRM, or “digital rights management,” which exists thanks to the Digital Millennium Copyright Act (DMCA) of 1998. Because of DRM, Amazon (or any digital bookseller) can dictate how you use and access your books, or even remove the books because content with DRM is really something you’ve leased, not something you own. Amazon even uses a proprietary file format (previously mobi and now AZW) for ebooks instead of the open epub format, which prevents users from reading their books on anything but a Kindle device or the Kindle app.
I stopped buying books from Amazon years ago and switched to Kobo, which is still not perfect but does a much better job than Amazon, and offers some DRM-free books. Still, I have a lot of Kindle books that I want to be able to read but don’t because they’re trapped in Amazon’s ecosystem. Unfortunately, I spent many years taking advantage of ebook sales so I have hundreds of books there. Kirk sent me this video explaining how to download your Kindle books and convert them using Calibre and this de-DRM plugin. I almost didn’t try it because I attempted to do this many years ago and it didn’t work and I got frustrated. However, I am better at using the computer and perhaps computer people are better at explaining how to do things now, so this time I was able to succeed. Here’s what I did:
- Downloaded all my 500+ Kindle books. I can confirm that the option to download from the website is no longer available. I am guessing you could download books to a Kindle device then transfer them to a computer, but I don’t know that for sure. If anyone tests it and let’s me know, I’ll update the post!
- While I was at it, downloaded all my Kobo books (here’s how).
- I had a hard time figuring out where the Kobo books downloaded to on my computer. This website explains where to find them.
- The Kobo books with DRM download as ASCM files that only open with Adobe Digital Editions. This program is free to download. You can open the ASCM files with it and convert them to epubs.
- Set up de-DRM plugin (if you’re doing this, make sure to add your Kindle serial number per the directions, or it won’t work).
- Added books by dragging them all in to Calibre (or you can use the Add books button). I dropped in my epubs (books that were natively epub and others that I converted from ASCM) and AZW format books.
- Converted the non-epubs using the Convert books button. Ta-da. Now everything is a DRM-free epub and I can use it however I want!
This might sound like a lot of work for books that I already have access to but it’s the principle of the thing. If I buy a book, I should be able to read it however I want. I am also concerned that Amazon, in particular, might start being more aggressive in its censorship. Consider, for example, that Amazon’s owner Jeff Bezos, who also owns The Washington Post, announced that he is now directing the paper’s opinion section to be “[writing] every day in support and defense of two pillars: personal liberties and free markets.” Yikes. How likely is he (or someone working for him) to decide that ebooks need to also be in “defense of personal liberties and free markets”? I don’t know, but the point is that he could do something to fuck up access to all the books you bought. Call me a radical libertarian if you must (just this once [but please don’t lol]), but I think you should own the stuff you buy!
Now that I have all my ebooks downloaded, converted, and in once place, I’ve been working on getting the metadata organized. You know I love organizing metadata (this is not sarcasm!). I’m like an autistic child happily stacking blocks over here except I am tagging my books consistently. This is very similar to what I did with my music collection two years ago and what I did with my flashcards last year (in fact this is ongoing. I get bursts of productivity then ignore it for weeks. It’s very hard to double check and tag literally thousands of vocabulary flashcards). I guess the books are this year’s digital housekeeping project. As with both of those previous projects, I do feel like this is something I should have been doing all along to keep my library organized, but unfortunately, I abdicated control of my digital possessions to a corporation. Much like streaming or storing information on the cloud, letting someone else manage my ebooks means that whoever is managing can make decisions that I don’t like. It means I’m stuck with some stupid app that is probably going to advertise at me even when I’m paying a subscription fee—it means I’m paying a fucking subscription fee to study flashcards! As I wrote about social media last month, “We trade our data and sanity and convenience.” That’s true here too. It does take a little more effort to manage my own media but I know it is mine and can’t disappear or have features randomly eliminated. Yes, all roads on this blog apparently lead to complaining that we have ceded too much control over many aspects of our lives to corporations. It keeps happening so I’m gonna keep talking about it as I try to claw my way out (and hopefully drag some of you with me).

Kitchen Witchery
Aside from the new bread machine adventures, I tried out this recipe for oatmeal cream pie bars. I do really love the Little Debbie oatmeal creme pies, so when I saw this recipe I was excited for a low-effort, homemade version. They are very good. My only disappointment is that I didn’t get my frosting all huge and fluffy like it is on the recipe website. Still, I’m not complaining.


Cat Therapy
Finally, here are some cat photos for your nerves. Is Fritz the world’s most photogenic cat?




